Put off plans...

Well this week ended up not being as busy as it was supposed to be. I had the nurologist call on Monday, and they rescheduled Rileys appointment for August 2nd because the doctor is having surgery, and will be on medical leave. Also Jamie (Riley's Play Therapist) is on vacation in North Myrtle Beach. It's weird to acctually know people who vacation where I grew up. I mean I know people vacation there, but I never thought it would be someone I know lol. So that knocked off 2 appointments for this week. Then I am talking with Pat through an email yesterday, and found out that Emily (Riley's Occupational Therapist) had her baby 6 weeks early. I get a call this morning saying they do have someone who is coming in, but they weren't prepared for this, and I mean who would be, so as of right now the appointment for today is cancelled unless the person covoring for Emily feels like coming out today. By the way they said the baby and mother are fine, but the baby is in the NICU because of how early she is. I know it is not Emily's or the baby's fault, and there is nothing that could have been done to change it, but I am a little disapointed that she won't be coming out for quite some time now because she was the specialist in the sensory area of OT. Riley had his evaluation, but she had not really worked with him yet. I was hoping that she could have worked with him a bit before she had her baby so that she could get a plan of action down on what to do with him while she was out. You cannot change the past though so we will just move on with the present and take it as it comes. I am sure it will all work out in the end. So the only thing left for the week is going to be Rileys IV iron tomorrow morning.

Riley had his 2 year check up on Monday. The doctor said everything looked fine, and I am doing everything I need to be. I asked about the MRI since I won't have an appointment with the nurologist until august now,a nd she has said that if it were abnormal I would have gotten a phone call by now, but she would check into it,a nd call me. I still haven't gotten a call. They did give me the develpoment check list for me to fill out before the appoinment. I thought that was a waste of time just for the fact that I know he isn't on track with his develpoment, and I am already taking the measure that I need to take to try and get him on track. I am thinking of changing pediatricans offices. I feel like this one doesn't even try to remember who you are, or what is going on with your child. I mean the 1st time I took Riley there she came in and said "She's so cute" or something along those lines. The first thing I thought was did she even look at HIS records, because if she had she would have known that Riley is a boy, and not a girl! Not only that they totally missed his iron being low. Didn't even question why he was so pale. When I went to the WIC office the 1st thing the nurse asked me is why he was so pale. She knew, but the doctor at the pediatricans didn't? Not only that when I first expressed my concerns for autism the pediatrician treated me like I didn't know what I was talking about. At this point I am debating it justbecuase if I go to another office and I going to get the same thing? Doctors who just read the charts, and don't really try to get to know their patients. Is the pediatrican's office that he is at now going to start to take notice, and get to know him a little better? Another thing they do at this office is some sort of electronic vision test. They never did this back at the beach, and I know it not just Riley because they did it to Jade too when we 1st went there. Back in March when I took Riley and Jade for the 1st time they did a vision test on both. Jade sat there and tookthe test, but Riley ripped the probes off of his head the minute they were on. They said no worries we will just do it at his 2 year check up. So while we were there they put the probes on. I am holding Riley in my lap and holding his arms down so he will leave the probes on while they try to get him to watch this tv with some extramly annoying music and random images. As we set there the probes keep falling off. I try to stick them back on, hold them on, and she even repalces the probes, and yet they keep falling off. Uhh I wanted it to just get done so he didn't have to do it AGAIN. So anyways I am supposed to take him back next month for a test I don't even see the signifigance in. I mean I am sure the results aren't really accurate because when you have probes falling off, and a kid that doesn't want to look at the TV with the annoying music coming from it.

Oh another thing that happened was we finally have Riley's speech therapy set up now. Lori will be coming out on Monday's and Wednesday's at 2:15. She gave me the option of doing one day for 45min to an hour or 2 days at 30 minutes each. I went with the 2 days just because I don't see Riley setting there for an hour. We will see how it goes I guess.

That's it for this post. I might update you all tomorrow after the hemotologist appoinment. See ya next time!

Happy Birthday Riley & Lots of appointments!

Just finished celebrating Riley's 2nd birthday this weekend. His birthday isn't until the 17th, but we went to Myrtle Beach to celebrate with friends and family. It was a joint birthday party with my best friend's daughter Sammy who is turning 4. So we has Thomas the train and Hello Kitty for the themes. We had a giant water slide, a little bounce house, and an inflatable bowling set. Riley had a good time even though he didn't want anything to do with the inflatables or the cake, he just wanted the Thomas off of it. He did like his gifts though :D

The birthday party was great, but now it's time to get back in the groove. Last week I had Riley's OT (occupational therapist) Emily come to the house. She said from what she seen that Riley shows signs of being able to make lots of improvement with his sensory issues. She also said that it has been proven him not liking things or people touching his hands is directly related to what he eats, and if we can improve on that then his eating will improve too. Also she said that Movement (like him being scared on a swing or being up high on a table) is directly realted to his speech so if we can improve on the movemement then his speech should improve. She also say alot of the times sensory problems are nurological. I already have Riley an appointment with a nurologist which I wasn't going to mention anything about until I was sure what was going on, but I guess it comes more into play now. Back in April I was changing Riley when I noticed a small patch of hair in the top of his butt crack. I googed it, and found info about a sacral dimple. I called the pediatrican, and took him the next day. At the visit she said it looked fine, but to be sure she set him up with a nurologist which I take him to on the 22nd, and also wanted him to get an MRI which is this Wednesday at 9am. For the MRI they will have to sedate him so that he doesn't move while they do it.

Anyways back to the OT. She said that it was good that I already had him an appointment with a nurologist. She said she would fax over the papers from our visit so that they would already have some background info on what is going on. So that was pretty much the 1st vistit just alot of questions for the most part. It is going to take 2 weeks for my insurance to get approved so we will start our wekly visits on Thurdays at 3pm starting not this week, but the week after.

This week is pretty simple. Riley has his MRI on Wednesday,and his play therapy later that day. Next week though I have his 2 year check up, the nurologist appointment, he has his hemotologist appointment to get his IViron, plus play therapy, OT, and hopefully speech too. On top of all of that Jade has a dentisits appointment too.

I think that is all for now. I am going to post a few more photos from the party, and I will be sure to update you when I get results from the MRI.